OMF's News Features
Our work at Open Medicine Foundation has been widely reported in the news. In the mainstream media, the top stories include:
Meet Linda Tannenbaum | CEO/Founder and President of Open Medicine Foundation – Shoutout Miami (1/18/2023)
Groundbreaking research into ME/CFS a pandemic ‘silver lining’ – Healthy Debate, (12/5/2022)
Long COVID Might Be Key to Understanding Why Some People Get—and Stay Sick – Newsweek Magazine (12/14/2022)
Open Medicine Foundation’s Interview with The Giving Block (12/15/2022)
Long COVID Has Forced a Reckoning for One of Medicine’s Most Neglected Diseases. The Atlantic. (09/26/2022)
“Our Next National Health Disaster.” Boosting Research into Long COVID and Chronic Fatigue Syndrome. Inside Philanthropy (08/25/2022)
Another Struggle for Long Covid Patients: Disability Benefits, The New York Times (10/21/2021)
Burnham-On-Sea artist joins judging panel for charitable bake off Burnham-On-Sea.com (9/09/2021)
Seven Significant Organizations Propose Critical Code Change To CDC’s ICD-10, Addressing Catastrophic Lack Of ME/CFS Case Tracking In The U.S. Yahoo Finance. (8/23/2021)
Burnham-On-Sea artist donates pet portrait to winner of ‘Pawfect Virtual Bake Off’ Burnham-On-Sea.com (7/03/2021)
Burnham-On-Sea artist donates pet portrait to charity’s virtual bake-off Burnham-On-Sea.com (5/01/2021)
“THE PUZZLE SOLVER” — EXPLORING A MEDICAL MYSTERY Times Publishing Group(4/02/2021)
Scientist Ron Davis Is Fighting to Cure His Son’s Chronic Fatigue: ‘It’s Like a Living Death’ People (3/31/2021)
Long COVID Has a Baffling Sister: ME/CFS InsideSources (3/19/2021)
FIRST IN PULSE: A NEW COALITION FOR COVID LONG-HAULERS POLITICO (2/26/2021)
For Many COVID-19 Survivors, Another Devastating Syndrome May Follow Next Avenue (1/08/2021)
Horrific Disease Ignored, Unreported in Minority Communities on Inside Sources (Oct 2019)
He pioneered technology that fueled the Human Genome Project. Now his greatest challenge is curing his own son. CNN (May 2019)
Millions suffer from an invisible disease: My ME / CFS story on CNN (August 2018)
OMF’s grant to launch the OMF-funded ME / CFS Research Center at Harvard on GenomeWeb (May 2018)
informative interview from Cape Town, South Africa, medical advisor for the ME Association, Charles Shepherd and the leader for the ME / CFS Foundation South Africa, Retha Viviers were interviewed on Afternoons with Pippa Hudson (February 2018)
article on Cryptovest.com about major donation from Pineapple Fund (February 2018)
US News and World Report article about $5 million donation from anonymous philanthropist (February 2018)
article in the Dana Point Times about the award-winning documentary Unrest (October 2017)
in-depth video story explaining ME / CFS on a top news magazine in South Africa, Carte Blanche, featuring CEO/President, Linda Tannenbaum and Dr. Ron Davis and the Davis/Dafoe family. (February 2017)
in-depth article in Stanford’s local news magazine, Palo Alto Weekly, including this compelling video.
[fvplayer src=”https://www.youtube.com/embed/9_HwOUiImvw?rel=0″ width=”438″ height=”244″]
another powerful article, this time in Stanford Medicine (May 2016);
an account of the Severely ill Big Data Study in the context of current events, on MedPage Today (January 2016);
compelling interview with Dr. Ron Davis on BBC Radio about his race to save his son (October 2015);
moving article on Dr. Davis, his son, and the End ME / CFS Project, in the Washington Post (October 2015);
published article by Linda Tannenbaum discussing the symptoms of ME / CFS, on HuffPost (March 2015
Reports on Research Meetings sponsored by OMF include:
- detailed report of two-day Working Group meeting and Community Symposium on the Molecular Basis of ME / CFS on HealthRising (by Cort Johnson, September 2017) and Deep dive into the Science on ME on #MEAction (by Adriane Tillman, September 2017)
- high-level report on the Community Symposium on the Molecular Basis of ME / CFS on Stanford Medicine Scope (by Raeka Aiyar, August 2017)
Science bloggers within the ME / CFS patient community have written a series of excellent and detailed accounts of the research, including:
- HealthRising: Celebrating Open Medicine Foundation at 10 Years (December 2022)
- HealthRising: “The Tompkins Effect” at Harvard University: More than just an ME / CFS Research Center (December 2019)
- HealthRising: New Hub of ME / CFS Research Opens at Harvard Plus the “Hidden Gem” and New Insights (August 2019)
- HealthRising: Major CNN ME / CFS Article Highlights International Awareness Day (May 2019)
- HealthRising: Threading the Needle: Nanoneedle Scores Big in First ME / CFS Test (May 2019)
- HealthRising: ME / CFS, Naviaux’s Cell Danger Response and a Nervous System Under Threat (Oct 2018)
- HealthRising: The Metabolic Trap Shines During the Symposium on the Molecular Basis of ME / CFS at Stanford (October 2018)
HealthRising: New Harvard Chronic Fatigue Syndrome (ME / CFS) Research Center Fulfills Crucial Need (July 2018)
HealthRising: Dynamic Duo: Lucinda Bateman and Ron Davis Rock the Brain Science Conference (June 2018)
- Health Rising: Dr. Ron Davis (finally) gets his NIH grant (June 2018)
- article in Health Rising about “Monster Donation” received (February 2018)
- Dr. Ron Davis spoke at the University of Texas to the biological and bioengineering departments about affordable diagnostics technologies. (January 2018)
- report on the ME / CFS Collaborative Research Center at Stanford University. (December 2017);
- an interview with Dr. Ron Davis about the disease and Dr. Davis’ determination to find a cure on Mendelspod.com (June 2017)
- report on research featuring Dr. Ron Davis and Scientific Advisory Board members Dr. James Watson, Nobel laureate, and Dr. Mark Davis on Health Rising, June 2017;
- details of research update from Dr. Ron Davis exploring his approach to understanding ME / CFS on Health Rising (March 2017)
- the implications of initial findings from the Severely ill Big Data Study, presented by Dr. Davis at the 2016 Invest in ME London conference (by Simon McGrath, on #MEAction, June 2016);
- details of the exciting results of Dr. Robert Naviaux’s breakthrough Metabolomics and Genetics Study on Health Rising (by Cort Johnson, September 2016). See also earlier articles: May 2016, April 2016 and March 2016;
- details of the Severely ill Big Data Study (by Cort Johnson on Health Rising, August 2015);
- an interview with Dr. Ron Davis and our CEO, Linda Tannenbaum, about the scope of the End ME / CFS Project (by Clark Ellis, on Phoenix Rising, May 2015)
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