An Engineer with ME / CFS Shares his Story
My name is Steve and I’m from Hobart, Tasmania, Australia.
I’ve had moderate ME / CFS for around 18 months. I suspect I had a much milder case for much longer. My friends thought I had ME / CFS for years.
When I was well, I loved getting out on my mountain bike with a group of friends or jumping on a plane to explore a new country. I miss these activities; I miss the friendship that came with them and I miss the self-identity these activities were part of.
Since I became ill, life has become a lot simpler. I don’t have to worry about the endless possibilities’ life has to offer and whether I could be doing something better. I’ve had the opportunity to take a step back from my busy life and see the big picture. As I can no longer ‘just work harder’ I’m learning how to prioritize and work smarter to achieve the things I want.
I first heard of the OMF when a friend sent me a Youtube link to presentations by Ron Davis and Dr. Robert Phair. As an Engineer, I was excited to see someone looking at the ME / CFS puzzle in the same way that I would.
I hope we can get a real understanding of what is going on with ME / CFS so we can provide some clear information to sufferers and those who treat them.