Search
Close this search box.

Spring Into Action: Join the Hope Builders Community!

Step into spring as a Hope Builder! With the arrival of a season that symbolizes renewal and progress, we at Open Medicine Foundation are inspired by the strength of those living with ME/CFS and Long COVID. This season of new beginnings is the perfect opportunity to step up and make a difference.

 

Become a Hope Builder! You will join a special group of dedicated supporters who contribute monthly. Your donation provides a steady foundation for groundbreaking research and support programs. 

 

Today, we are honored to share with you an inspiring story from one of our dedicated Hope Builders. Meet Helen, a cherished member of our Hope Builders community. Helen is an OMF supporter and the mother of Manon, who at the age of 33, faced an unexpected life detour due to ME/CFS. Her narrative mirrors the journey of many families we stand alongside.

 

We Live in Hope: Manon’s Story

 

A collage of three pictures of Manon and her partner, Hugo. The first picture is in the gallery, the second in front of the Sydney Opera House, and the third in a park.

“My amazing 33-year-old daughter, Manon, has been battling ME/CFS since 2015. Discovering OMF was the first time in all our investigations into this devastating illness that we felt there was genuine hope

 

Manon’s initial three years were horrific. She had recently graduated from Edinburgh University. She was in Hong Kong for her first job with her partner, Hugo, when ME/CFS struck suddenly and ruthlessly. We had no choice but to bring her home. She could neither walk nor sit for two years. Engaging in conversation was nearly impossible. We battled the BPS group of psychiatrists in London, desperate to prove it was all in her head. 

 

With patience, her partner and our family provided support and the space for Manon to explore various avenues of recovery. Mestinon proved crucial then and continues to be so to this day. The introduction of a wheelchair became critical. 

 

Despite her disability, Manon has found a way to work part-time from home. Her partner does everything for her to give her the headspace to flourish at work. As time has passed — nearly ten years for her — we’ve learned to distance ourselves from constantly looking at research papers and attending conferences on ME/CFS. 

 

Hope is a challenge, and I hope our trust in OMF will bear its fruits! That’s why I am calling on the OMF community to join me in becoming a Hope Builder.”

 

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

What are the advantages of giving from your Donor Advised Fund (DAF)?

  • Your gifts to your donor advised fund entitle you to an immediate income tax deduction at the time of contribution.
  • You avoid capital gains tax on appreciated assets you place in your donor advised fund.
  • Your fund’s investment gains accumulate tax free.
  • Funds are distributed to Open Medicine Foundation in your name and immediately put to use to support our worldwide research efforts.


How do I make a donation through my DAF?

Just click on the DAF widget below. It is simple and convenient to find your fund among the over 900 funds in our system.

Still can’t find your fund? 

  • Request a grant distribution through your Donor Advised Fund sponsor
  • Be sure to use OMF’s EIN #26-4712664
  • You can also designate OMF as a beneficiary for your Donor Advised Fund
  • Questions? Give us a call at 650-242-8669