ME/CFS Awareness Month
Melissa's Story
During ME/CFS Awareness Month, we’re sharing stories of people whose lives have been profoundly disrupted by ME/CFS. Today, we share Melissa’s story.
Before ME/CFS, Melissa lived a full and active life. She describes herself as driven, energetic, and a bit of a perfectionist — someone who worked hard and embraced life to the fullest. She was teaching long hours, renovating her home on weekends, gardening, socializing, and playing sports. By her own account, it was a dream life.
Since becoming ill, Melissa’s world has changed dramatically. She can no longer work or exercise, and each day requires careful pacing. Most days, she has only a couple of hours where she can manage basic activities — preparing a meal, doing small jobs around the house, or occasionally catching up for a coffee with her husband or a friend.
“I walk a tightrope. Some weeks I might manage the grocery shopping, only to spend the next day in bed recovering.”
Viral infections can be particularly devastating. “If I catch something like COVID, I can be back in bed for months. After a long period of complete rest, I slowly begin to improve again — but it feels like every virus sets me back further. I never quite return to where I was before. COVID has been especially brutal.”
Melissa felt the impact of ME/CFS at just 29 years old. Now, at 51, she continues to navigate the long-term impacts of this disease—it has steadily taken so much from her independence and the life she once knew.
Despite these challenges, Melissa remains determined to contribute in whatever way she can. “It’s hard to give back with this illness,” she says, “but I’m very grateful and keen to do my little bit.”
Melissa’s experience reflects the ever-growing crisis our community knows so well. Millions are living with ME/CFS and Long COVID — still waiting for answers, effective treatments, and the chance to reclaim their lives.
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